Wild-Heart.net

As many of you who actually still take the time to read here know, my youngest son has a schizophreniform disorder, schizoaffective disorder, along with a couple of other co-morbid neurological disorders. The majority of the hits that this site receives are from those looking for information about childhood onset schizoaffective disorder. At least once a week I receive a Contact Form response from a young adult suffering for years from this disorder or another parent seeking advice and information. Childhood onset is simply so very rare and there is so very little information available online even today, in 2008, the most information pertaining to childhood onset is the results of a study done in Finland. Don’t get me wrong, that study was very important in diagnosing my son, it wasn’t a huge part but it was a confirming factor.

So, where does all of this leave me? Where does it leave other parents? Honestly, it leaves us a bit lost and alone at times. Childhood onset of what are typically adult onset neurological disorders are different than their adult counter-parts. They are usually more severe and more difficult to treat. But we survive. One thing we all agree would be nice is a forum, a safe haven for those of us caring for these precious children to be able to share our experiences, good and bad. A forum for those of us is the one thing that would give us a sense of “community” that doesn’t exist. Sure there are forums for the adults with these disorders and their caregivers but there is nothing for those like us.

At least there wasn’t until now. For all of you silently searching for help, hope and understanding, I am pleased to give to you: Wild-Heart.net Forums; A Safe Haven For Those Who Care For Children With Schizophrenoform Disorders.

I’ve reopened SloppyGeeks.com as a forum for all things Geeky. All are welcome. Please read the only topic that is open to guests (nonregistered members) before registering, the topic titled Rules. Have fun.